Thoughts/prayers requested

Just wanted to provide an update and appreciation for all of the well wishes provided by each of you. Milo is now 3 months old and weighs 9 lbs 5 oz. He's getting stronger with physical therapy each week and is growing well.

Merry Christmas!

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Just wanted to provide an update and appreciation for all of the well wishes provided by each of you. Milo is now 3 months old and weighs 9 lbs 5 oz. He's getting stronger with physical therapy each week and is growing well.

Merry Christmas!

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Early Happy New Year....

Baby Milo rocks.
 
Merry First Christmas Milo

Happy Santa Claus GIF by Macy's
 
Poor kid. Glad he is 'okay'

Was wondering though.. do doctors know if children will be born with DS, or is that not possible for discovery until later in gestation?
 
Poor kid. Glad he is 'okay'

Was wondering though.. do doctors know if children will be born with DS, or is that not possible for discovery until later in gestation?

There are genetic tests available while the child is in the womb to find out. Maybe knowing ahead of time better prepares the parents for raising a child with special needs.
 
Yes, some screening can be done through blood testing around the end of the first trimester and then another 6 weeks or so later. These are done for those that have a higher risk of having a child with DS (older women or those with previous DS biths), but are not 100% accurate.

Around mid gestation (20 weeks), you could have some amniotic fluid taken or some cells from the placenta taken (10-12 weeks) that could be more accurate, but also carry about a 1% chance of miscarriage. The placenta cell testing can also screen for other abnormalities such as cystic fibrosis or sickle cell disceases.

Many couples that aren't deemed to be at an increased risk for DS, which is on average around 0.1% anyway (1 in 1000), forgo the invasive testing.
 
All of this, plus there are some indicators that can be found on ultrasound.

I’m sure this has been looked into but many people with DS also have heart and other health issues. If that’s the case, I was going to recommend a very good pediatric cardiologist at UVA Children’s but it looks like that might be pretty far from the family.

Glad to see that he is doing well. Being in the hospital for an extended stay can be really tough for a number of reasons. That must have been such a relief to get him home.
 
All of this, plus there are some indicators that can be found on ultrasound.

I’m sure this has been looked into but many people with DS also have heart and other health issues. If that’s the case, I was going to recommend a very good pediatric cardiologist at UVA Children’s but it looks like that might be pretty far from the family.

Glad to see that he is doing well. Being in the hospital for an extended stay can be really tough for a number of reasons. That must have been such a relief to get him home.

They've got a long list of specialists that are about 1.5 hours away in Roanoke they see weekly or bimonthly to monitor the other issues. UVA is definitely too far for regularly scheduled visits, but appreciate the suggestion.

My mother in law recently retired and is watching Milo while the mother is going back to work. However, she's also the primary caretaker for my father in law, who's had several strokes and congenital heart failure and just had a pacemaker put in yesterday. Along with her father with Alzheimer's who fell and broke his femur also having surgery yesterday, it's been a rough time recently. Both came out of surgery okay, so I know she's looking forward to New Years and a couple drinks.
 
They've got a long list of specialists that are about 1.5 hours away in Roanoke they see weekly or bimonthly to monitor the other issues. UVA is definitely too far for regularly scheduled visits, but appreciate the suggestion.

My mother in law recently retired and is watching Milo while the mother is going back to work. However, she's also the primary caretaker for my father in law, who's had several strokes and congenital heart failure and just had a pacemaker put in yesterday. Along with her father with Alzheimer's who fell and broke his femur also having surgery yesterday, it's been a rough time recently. Both came out of surgery okay, so I know she's looking forward to New Years and a couple drinks.
Yeesh. Sounds like your MIL has her hands full.
 
They've got a long list of specialists that are about 1.5 hours away in Roanoke they see weekly or bimonthly to monitor the other issues. UVA is definitely too far for regularly scheduled visits, but appreciate the suggestion.

My mother in law recently retired and is watching Milo while the mother is going back to work. However, she's also the primary caretaker for my father in law, who's had several strokes and congenital heart failure and just had a pacemaker put in yesterday. Along with her father with Alzheimer's who fell and broke his femur also having surgery yesterday, it's been a rough time recently. Both came out of surgery okay, so I know she's looking forward to New Years and a couple drinks.
Wow.
 
My mother in law recently retired and is watching Milo while the mother is going back to work. However, she's also the primary caretaker for my father in law, who's had several strokes and congenital heart failure and just had a pacemaker put in yesterday. Along with her father with Alzheimer's who fell and broke his femur also having surgery yesterday, it's been a rough time recently. Both came out of surgery okay, so I know she's looking forward to New Years and a couple drinks.
Sounds like a saint. Cherish this woman!
 
Sounds like a saint. Cherish this woman!

Those traits were passed down to my wife, who has already had to deal with trying times herself with her deadbeat biological father's family. If you saw my postings on this year's ago on SH, then you may recall, but a cliff notes version.

Grandfather passed after breaking his hip and heart failure.

Uncle, who was taking care of both of his parents died from heart failure and wasn't found until a few weeks later. Grandmother, Alzheimer's and dementia, didn't know anything and didn't take medication for those weeks and was by herself. Wife had to fly to NJ and take care of all arrangements for the uncle's estate, clean up of his house (decomp), and have the grandmother brought to a mental care nursing home that was about an hour away from us in VA, because my wife was the only known family member besides the deadbeat that was written out of the wills back in 1984. Unfortunately, I wasn't listed on any of the paperwork, so I couldn't help with any of the legal/banking stuff and could only take care of our household and provide support. Grandmother passed a couple years later.

Needless to say, she comes from "good stock" and stronger than I'd expect anyone in their early 30s at the time to deal with. Let alone helping her mother being an advocate for her dad (adopted) when he first started having issues with strokes.
 
A recent notification/reaction to a couple posts in this thread has me unfortunately having to update with bad news from a few weeks ago. My wife's grandfather passed away a few days into the New Year. While he initially came away from the surgery okay, he developed a slight fever which was causing him to go back to the hospital a couple times the week following his surgery. The grandmother was able to see him in person for the first time since March ( COVID protocols at his home for Alzheimer's) and had a good visit, leaving with a kiss on his forehead and "I'll see you tomorrow." When she got home 20 minutes later, she received a phone call that he had passed as soon as she had left (heart).

While one never wants a loved one to pass, he had actually lived over a decade longer than his doctors expected due to his heart, let alone Alzheimer's. My wife and I actually moved up our wedding back in 2010, as we wanted him to be present and weren't sure how long he had remaining. He not only saw our wedding, along with a few other grandchildren getting married, wearing the suit I bought him for ours :) , he met 4 great-grandchildren with Milo being the 5th. As a matter of fact, he had never actually held a baby for the first couple years, even his own, until my wife placed our son in his arms 8 years ago. He was an extremely proud Korean War Vet and had a laugh/ chuckle that was infectious.

So while it was a sad day/ week after, we all know he's in a better place and watching down enjoying the antics of all of his children/ grandchildren.

As for my father- in- law, he came home from the hospital 17 days after his pace maker surgery. Always in good spirits, but with his congenial heart failure, setbacks and future outlook aren't great.

On a good note, Milo is doing great!

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Alzheimer’s is a bitch. Sorry for your loss.
 
Alzheimer’s is a bitch. Sorry for your loss.

Alzheimer's and dementia is certainly that. My wife has now lost two grandparents to it over the last two years, with my grandfather a few years prior. One of the more difficult diseases to deal with, as the person you know slowly disappears and then their body starts to fail. Hard to fault family for rarely visiting, as the afflicted doesn't recognize you and will forget you as soon as you leave.

My wife and I have DNRs should we ever be diagnosed, along with plans to hold a celebration/party rather than a funeral upon our passing.
 
Unfortunately, my father-in-law has really deteriorated in the recent couple weeks with his congenital heart failure. He couldn't lay down without feeling as if he was suffocating due to the fluid build up and has been in the hospital for the past week. My mother-in-law got a phone call during church that she needs to come in and figure out what to do after he had a bad night. He'll be coming home tonight or tomorrow morning with hospice care to make him as comfortable as possible.

My wife is planning on leaving in the morning with our kids to spend whatever time they can with him this week while I stay behind with work and our pets. Currently packing their suitcases, virtual school work, and snow clothes to play in since they got several inches in the last 24 hours.I

2021 has not been kind, but we've known the time has been close for a while and wasn't unexpected.
 
Unfortunately, my father-in-law has really deteriorated in the recent couple weeks with his congenital heart failure. He couldn't lay down without feeling as if he was suffocating due to the fluid build up and has been in the hospital for the past week. My mother-in-law got a phone call during church that she needs to come in and figure out what to do after he had a bad night. He'll be coming home tonight or tomorrow morning with hospice care to make him as comfortable as possible.

My wife is planning on leaving in the morning with our kids to spend whatever time they can with him this week while I stay behind with work and our pets. Currently packing their suitcases, virtual school work, and snow clothes to play in since they got several inches in the last 24 hours.I

2021 has not been kind, but we've known the time has been close for a while and wasn't unexpected.
I'm sorry to hear this. Let's hope for the better.
 
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