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Praying for you and your family!
What a handsome little man!Milo is improving, but still in the NICU. Had a good visit with his parents last Sunday to provide some "parent care" gifts.
Current update on Friday 10/9:
"Soo.... room air trial begins today!!! Also, platelets were at 63. They are changing his fluids with lower amounts of sugar. Then they will do sugar tests like an hour after they change his fluids and he eats.
Also, the genetics test came back and he does have Down syndrome.
The cmv virus came back negative too"
He's gaining weight and appears to be on a path to eventually leave the hospital, but that may still be days/ weeks away.
Down syndrome is not a phrase any parent wants to hear, but knowing their strength/ faith and a strong support system, they will be a happy family.
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No parent wants to hear that but those children are touched by God in a special way.....as long as he is healthy that's all that should matter. Glad to hear he is doing better.Milo is improving, but still in the NICU. Had a good visit with his parents last Sunday to provide some "parent care" gifts.
Current update on Friday 10/9:
"Soo.... room air trial begins today!!! Also, platelets were at 63. They are changing his fluids with lower amounts of sugar. Then they will do sugar tests like an hour after they change his fluids and he eats.
Also, the genetics test came back and he does have Down syndrome.
The cmv virus came back negative too"
He's gaining weight and appears to be on a path to eventually leave the hospital, but that may still be days/ weeks away.
Down syndrome is not a phrase any parent wants to hear, but knowing their strength/ faith and a strong support system, they will be a happy family.
View attachment 6371
What a handsome little man!
No, it's certainly not. But I know two families well with Down's children and it was the best thing that ever happened for the family and the adult children couldn't possibly be happier people. They wouldn't change anything about it if they could.Down syndrome is not a phrase any parent wants to hear
No, it's certainly not. But I know two families well with Down's children and it was the best thing that ever happened for the family and the adult children couldn't possibly be happier people. They wouldn't change anything about it if they could.
I'm not familiar with setting the gofundme stuff up, but if possible I think you could get some good help if you posted the info here.First picture without the ventilation tubes, as they're seeing how he does without supplemental oxygen.
I will give a shout out to the Ronald McDonald house. While their facility is closed due to COVID, they've partnered with a local hotel (one of the best in the area) for reduced rates (essentially half price) . Room rates are typically $150+ , but with friends and family paying for a couple nights here or there, along with a gofundme page for expenses, the parents can focus on Milo without worrying.
I'm not familiar with setting the gofundme stuff up, but if possible I think you could get some good help if you posted the info here.
My mom worked with special needs kids as a diagnostician for years. the level of care and therapy even public schools can provide is night and day better than even a decade ago. keep the updates coming, prayers out for baby Milo.
Who do you think you are? Sharkonbicycle? Thats his schtick.I was going to come n here to be a dick and say something like fuck off after reading just the thread title, but after reading more l, in all sincerity, I truly hope the best for the little fella and your family.
DoneI'm not one that asks for these types of threads, however, my sister-in-law/brother-in-law have given birth to a baby boy a few days ago. After a difficult time becoming pregnant, they are now faced with difficulties/hardships beyond typical. After having difficulties during labor, the baby was eventually delivered via c-section less than 5 lbs even though he was 39.5+ weeks.
Lung and heart issues were the primary concern, but Down syndrome is possible, with genetic testing waiting to be preformd. The state (WV) hospitals didn't have room, so they had to come to a hospital closer to my family in VA (45minutes), but still over 1.5 hours away from their home. The baby is currently in NICU and family/friends have been providing hotel/food costs for the parents.
Should you believe in prayer, I ask you to pray for Baby Milo and his parents Brandon and BJ.
Thank you.